What do we do? We fuel courage and resilience by applying what experienced cancer patients can teach us! We are also very much about turning adversities and challenges into opportunities and inspirations to life’s challenges.
It works. It’s fun. It matters.
Frequently Asked Questions – FAQs
What do adventure, creativity, innovation and cancer have in common?
When you analyze the characteristics of resilience, you will discover that knowledge, the arts, creativity, adventure and decision-making provide a wonderful basis to build your resilience. For example, if you are adventurous, you deal with unpredictability and uncertainty in a positive fashion. By being constructively challenged by difficult things, you intuitively engage in connecting all your senses, abilities and emotions. In other words, you are involved in “connecting your dots” and in doing so uncover new dots that were never before seen. (that defines innovation!) Although their is a chance of failure, there is a wonderful and tantalizing satisfaction on completion. Yes, planning and preparation are important and you expect to be pushed. The satisfaction of trying your hardest is incredibly gratifying no matter the outcome. So, if you are an artist or a patient, an adventurer or a caregiver, you deal with the exact same opportunity to have a satisfying outcome. Imagine that!
Do I need to have cancer to benefit?
Heck no. Quite the opposite. You can be perfectly healthy. Or, you can have any ‘ole chronic illness, traumatic injury or other challenge in front of you. Any age, any place, anyone. Bring it on.
What problem are you trying to solve?
Improvement in patient support is not keeping pace with the incredible advances in cancer care. New patients are continually having to “re-invent the wheel” when it comes to dealing with cancer. In fact, most people are a bit unsure how to support a friend or family member with cancer. Worse, most patients have some degree of shock or fear at their diagnosis. We want to try to change that. We believe that some of the most important and influential sources of patient support knowledge, ideas and encouragement comes not only from your clinical team but from experienced cancer patients. We also believe that patients who have experienced cancer, disability or other illness want to help other patients, but the opportunities to do so are limited. We want to change that. We want to revolutionize patient support.
How are you solving the problem?
Patient Ahead is taking an innovative approach in addressing patient support and in particular, cancer support. 1st, we want to leverage past patient-driven experiences with current digital and mobile technology to help new patients. This means creating an accessible forum for engaging with patients and understanding and sharing the experience. This website is only a start on that path. 2nd, we want patients to consciously and continually build resilience, a skill that can be easily learned. 3rd, we want to link common life activities such as adventure and the arts to the support process. We are happily mobilizing experienced patients which we view as an under-utilized resource in confronting life’s challenges. All of this is for the patient ahead.
How are you organized?
Patient Ahead is a social enterprise. What’s that? A social enterprise is an organization that applies entrepreneurial strategies to maximize improvements in human and/or environmental well-being. We think being a social enterprise model is a better, more transparent, inclusive and sustainable way to function given our purpose. In other words, a social enterprise worth doing.
The following video describes what a social enterprise is all about. We are grateful to the Kroll Foundation and we thank them for their well-crafted message they have shared through YouTube.com.
What is the motivation for doing this?
It’s the right thing to do. The legacy of experiences that enabled our survival motivates us to support the patient ahead. We owe our survival to their experience and sacrifices and we are most grateful. Patients helping and learning from other patients can go a long way to making the road ahead a much happier one!
What are some of the initiatives being pursued?
We are pursuing a number of fun initiatives. Below is a brief presentation of some of the initiatives.
We encourage direct patient support, enrollment in things like a bone marrow registry, awareness of how cancer is dealt with in distant places, and more. Browse through the website. Be inspired. Join-in. Participate.
How can people participate or help?
Participate and have some fun! Share your ideas and adventures. Learn. Be inspired. Support us. Join us. Turn your knowledge into hope for a fellow patient. If you have been involved with cancer, you are encouraged to share your experience, adventures, comments, creative endeavors, insight, encouragement and suggestions. Inspire others.
How is the website financially sustained?
There is no wealthy benefactor or famous celebrity behind us. Most of it is centered around a leukemia patient struggling like everyone else. Sustainability is an issue. So, the decision was to be a social enterprise. A social enterprise tries to sustain itself rather than constantly asking for donations or grants. Meanwhile, we are struggling to generate enough mobile and web traffic to make us sustainable. But, you have to start somewhere… and we have no intention of giving-up. That is why we are still here 🙂
Who started Patient Ahead?
A leukemia patient . . who directly benefited from the tips, encouragement and inspiration derived from clinicians, fellow patients, adventure and creative arts.
What are you NOT about?
We are not about giving clinical advice nor do we approve or encourage such. That is for clinicians with their patients to discuss and define. Rather, the effort is to try very hard to provide a repository of practical patient insight and a hub for adventure and creative arts.
All content on PatientAhead.com (Patient Ahead) including without limitation text, graphics, images, videos, advertisements, and links (“content”) are for informational purposes only. The content is not intended to be a substitute for professional medical treatment, advice, or diagnosis. Always remember to seek the advice of a qualified physician or health professional with any questions you may have regarding any medical concerns. Patient Ahead does not recommend or endorse any specific treatments, physicians, products, opinions, research, tests, or other information it mentions but we do allow others to express their views. The Patient Ahead content is not intended to be a substitute for professional legal or financial advice. Reliance on any information provided by Patient Ahead is solely at your own risk.